Alessio Caruso
Amount raised
$27,725.00
Objective $25,000.00

Hi, my name is Matthew Caruso and I am the father of a strong, charismatic little 2 year old named Alessio Caruso, who has been a little fighter from the day he was born and has been at CHU St Justine hospital in Montreal since one week of age with an extremely rare Immune system disorder called NLRC4 Mutation

It is a newly identified and extremely rare inflammatory disorder which is caused by a mutation in the NLRC4 gene, resulting in increased inflammation and damage to healthy tissues also known as autoinflammation. The overactivation of the immune system destroys the patient’s healthy tissues and is life-threatening without the proper treatments. In simpler terms, the immune system decides to activate even when there is nothing to actually fight, which causes the body to fight itself and causes harm to many different organs, producing multiple flare ups and fevers every few weeks. The disease is so rare that there are only 7 known cases worldwide. As our doctors explained to us at the time of diagnosis, after 6 excruciating and life-changing weeks in the intensive care unit where our son fought for his life, we would have had better odds winning the lottery than our son having developed this gene mutation seeing that my wife and I are not carriers of this specific mutation.

Having your 1st child is a challenge in itself, as most new parents can easily understand. Learning how to be a new parent with a child battling this extremely rare disease is a challenge we’ve been trying to cope with for 2 years now. It’s a psychological, emotional battle day in day out having to come to terms with the fact that as a parent you cannot protect or take away the pain your child goes through, leaving us feeling powerless countless times. But with the help of the incredible Immunology team, Intensive care unit, nurses, staff at CHU St-Justine Hospital in Montreal, and the countless donors such as yourselves, our little boy was able to have a fighting chance to overcome the darkest of times. It is with the help of generous, open-hearted people that donate to this wonderful foundation that Alessio’s immunology and rhumatology team are able to find the best treatments for children like my son, and give them the best possible chance at living a normal life. I cannot thank you enough for this wonderful gesture and my family will forever be grateful . Not only will these donations help my son, but it will help every other child and family that have to deal with incredibly tough health situations that are being treated by this world class immunology and rhumatology team at CHU St-Justine. From the bottom of our hearts, we thank you unconditionally for this donation, it means the world to us and to the community!

The Caruso family

********************************************************

Bonjour, mon nom est Matthew Caruso et je suis le père d’un petit garçon courageux et charismatique de deux ans nommé Alessio Caruso. Alessio est un battant depuis le jour de sa naissance et a résidé au CHU, l’hôpital Ste-Justine a Montréal depuis sa première semaine d’existence, puisqu’il est atteint d’une maladie immunitaire appelée mutation NLRC4.

Cette maladie est un désordre inflammatoire  récemment identifié et très rare causé par une mutation dans le gène NLCR4, qui résulte d’une augmentation de l’inflammation et d’un dommage aux tissus sains qui est aussi appelée l’auto-inflammation. L’hyperactivité du système immunitaire détruit les tissus sains du corps du patient et peuvent êtres mortels s’ils ne sont pas traités adéquatement. En simplifié, le système immunitaire s’active même lorsqu’il n’y a aucun virus extérieur à combattre, ce qui fait que le corps se combat lui-même causant des dommages potentiellement irréversibles aux différents organes et qui peut produire une résurgence au niveau des symptômes et de la fièvre a toutes les quelques semaines.

Cette maladie est si rare qu’il n’y a que 7 cas répertoriés à travers le monde. Comme nous l’ont expliqué les docteurs lors du diagnostic, après 6 semaines exténuantes et angoissantes aux soins intensifs ou notre fils luttait pour sa propre vie, nous aurions eu plus de chances de gagner à la loterie que de voir notre fils développer cette mutation génétique puisque ma femme et moi-même ne sommes pas porteur de cette mutation si particulière.

Avoir un premier né est un défi en soi comme tous les nouveaux parents peuvent en témoigner. Apprendre à être un parent avec son enfant qui lutte contre une maladie extrêmement rare est un défi avec lequel nous vivons depuis maintenant 2 ans. C’est un combat psychologiquement et émotionnellement éreintant dans le quotidien d’avoir à accepter le fait, surtout en tant que parents, qu’on ne peut protéger ou enlever la souffrance que subit son enfant et qui nous fait sentir impuissants jour après jour. Mais avec l’aide de l’incroyable équipe en immunologie, l’unité de soins intensifs, les infirmières, le staff de l’hôpital CHU Ste-Justine, et finalement avec l’aide de tous les généreux donneurs tels que vous-même, notre fils a reçu une chance inespéré de se battre et de  passer à travers ces moments difficiles. C’est avec l’aide de donneurs tel que vous, qui donnent à cœur ouvert a cette magnifique fondation, que l’équipe d’immunologie et de rhumatologie d’Alessio sont en mesure d’offrir et de trouver les meilleurs traitements pour les enfants tel que mon fils et de leur offrir la meilleure chance possible de vivre une vie meilleure. Moi et ma famille ne pourrons jamais vous remercier suffisamment de ce magnifique geste et nous vous serons à tout jamais redevables. Non seulement ces dons vont aider mon fils, mais ils aideront également tous les enfants et familles aux prises avec des conditions médicales difficiles et qui seront traités par ces équipes d’immunologie et de rhumatologie de renommée mondiale du CHU St-Justine. 

En notre nom et ceux de toute la communauté, nous vous remercions de ces dons qui aident à sauver des vies et qui nous redonne espoir d’une vie meilleure pour Alessio jour après jour.

Merci de tout cœur,

La famille Caruso.

Event Date
Sep 1, 2016 12:00 AM
Location Name
Page Individuelle - Approuvé
%LocationName%

My Team

Event

Donations and messages of encouragement (152)

elda gearey left a message
Dec 29, 2019 11:46 AM
may you grow and laugh and play.get
elda gearey donated $100.00
Dec 29, 2019 11:45 AM
Le Groupe Lemur Inc. donated an undisclosed amount
Nov 29, 2019 12:00 AM
Elisa Mucciardi donated $100.00
Oct 10, 2019 6:06 PM
Huguette Tessier donated $25.00
Sep 26, 2019 12:58 PM
Maroun Family Maroun Family donated $550.00
Sep 21, 2019 9:21 PM
Anonymous donated $1,000.00
Sep 20, 2019 9:56 AM
Isabelle Loranger left a message
Sep 19, 2019 8:09 AM
Bon courage Àlessio, bravo pour tes parents. Vous êtes formidables!
Vincent Morena donated $500.00
Sep 17, 2019 1:41 PM
Gino Berretta donated $500.00
Sep 17, 2019 1:33 PM
Perry Mazzanti donated an undisclosed amount
Sep 5, 2019 4:11 PM
Anonymous donated an undisclosed amount
Aug 30, 2019 2:03 PM
Rosie left a message
Aug 30, 2019 11:44 AM
We are all praying for You Alessio hoping that they will find a cure.
Rosie Pozzi donated $50.00
Aug 30, 2019 11:43 AM
Rosie Pozzi left a message
Aug 30, 2019 11:39 AM
We are all praying for you Alessio.
Anonymous donated an undisclosed amount
Aug 29, 2019 12:00 AM
Anonymous donated an undisclosed amount
Aug 28, 2019 1:13 PM
Bruno Zoccali donated $300.00
Aug 27, 2019 8:21 PM
David Collin donated $100.00
Aug 23, 2019 9:20 AM
Denny Di Marino donated $300.00
Aug 20, 2019 2:47 PM
Nayia Tsonis donated $100.00
Aug 1, 2019 12:58 PM
Mario Viglione donated $1,000.00
Jul 23, 2019 12:40 PM
François Roberge donated $1,000.00
Jul 18, 2019 10:31 AM
Anthony Martorana donated $100.00
Jul 16, 2019 4:34 PM
Giuseppe Salvo donated $250.00
Jul 16, 2019 12:28 AM
Patty left a message
Jul 15, 2019 11:06 PM
You guys inspire me everyday God Bless you all!
Patty Marinelli donated an undisclosed amount
Jul 15, 2019 11:05 PM
Sebastiano, Annalisa, & Mario donated $100.00
Jul 14, 2019 1:27 PM
Alfredo Zeppilli donated $150.00
Jul 13, 2019 8:27 PM
Antoinette left a message
Jul 10, 2019 10:15 PM
Dear Amanda and Matthew, May God bless your beautiful little family. Alessio is totally adorable. Love and hugs,
antoinette di paola donated an undisclosed amount
Jul 10, 2019 10:11 PM
Giuseppe Decobellis donated $50.00
Jul 10, 2019 5:52 PM
Les Volailles & Gibiers Fernando FERRARELLI donated an undisclosed amount
Jul 9, 2019 4:36 PM
GIANNA FERRARELLI donated an undisclosed amount
Jul 9, 2019 4:31 PM
Maria Ferrarelli donated an undisclosed amount
Jul 9, 2019 4:28 PM
Dario Santillo donated $500.00
Jul 8, 2019 9:56 AM
Nathalie Racha donated an undisclosed amount
Jul 7, 2019 11:57 AM
Carmine Como donated $50.00
Jul 7, 2019 10:51 AM
Luigi & Alessandra Ambrosio donated $200.00
Jul 7, 2019 10:10 AM
Paula Tat and Family donated $100.00
Jul 6, 2019 6:09 PM
Mario Spina donated $100.00
Jul 6, 2019 4:02 PM
Dino Caluori donated $100.00
Jul 6, 2019 1:46 PM
Antonio Discepola donated an undisclosed amount
Jul 5, 2019 9:32 PM
Marc-André Lorion donated $300.00
Jul 5, 2019 5:16 PM
Luigi Dalle Nogare donated an undisclosed amount
Jul 5, 2019 5:08 PM
Ennio & Teresa Caluori donated an undisclosed amount
Jul 5, 2019 1:16 PM
Rosa Di Gaetano left a message
Jul 5, 2019 9:06 AM
“Hey, little fighter, soon things will be brighter. God bless you all
Rosetta Di Gaetano donated $100.00
Jul 5, 2019 8:59 AM
RBC Insurance, Sales Advice Centre left a message
Jul 4, 2019 1:46 PM
On behalf of the RBC Insurance, Sales Advice Centre Leadership Team we humbly make this donation in support of your son Alessio on his difficult journey to recovery. Our thoughts are with you and your family. De la part de l’équipe de direction de RBC Assurances, nous faisons cette contribution en support à la cause de votre fils Alessio pour reconnaître son parcours difficile vers la guérison et pour vous exprimer tout notre support à vous et votre famille.
RBC Insurance, Sales Advice Centre donated $1,500.00
Jul 4, 2019 1:45 PM
Association des juristes Italo-canadiens du Québec Philippe Messina, président donated $300.00
Jul 4, 2019 1:26 PM
Bruce Carlini donated an undisclosed amount
Jul 4, 2019 9:43 AM
Anna Colarusso donated $500.00
Jul 3, 2019 1:59 PM
Nicky Kalogeropoulos donated an undisclosed amount
Jun 30, 2019 5:02 PM
Joanne and Suzanne Durocher donated $50.00
Jun 30, 2019 1:44 PM
Remo and Diane Zeppilli donated $500.00
Jun 30, 2019 1:36 PM
JP and Tanya Mazzanti donated $250.00
Jun 29, 2019 5:06 PM
Kelly Ioanna donated an undisclosed amount
Jun 29, 2019 12:17 PM
Sylvianne Chung donated $25.00
Jun 28, 2019 7:39 PM
Anonymous donated an undisclosed amount
Jun 28, 2019 10:21 AM
Daniel Sama donated $50.00
Jun 28, 2019 8:32 AM
Nick & Elisa Chinappi donated $50.00
Jun 28, 2019 8:21 AM
Association la Famiglia Marchigiana donated $2,500.00
Jun 28, 2019 12:00 AM
Audrey Charbonneau donated $10.00
Jun 27, 2019 10:54 PM
Sergio Arduini donated $75.00
Jun 27, 2019 10:37 PM
Ariella Rozansky donated $50.00
Jun 27, 2019 9:34 PM
Isabelle Ducharme donated $25.00
Jun 26, 2019 7:41 PM
Rosangela Ferrarelli donated an undisclosed amount
Jun 26, 2019 6:00 PM
Michelle Paquette donated $25.00
Jun 26, 2019 4:07 PM
Kelsey Mazzanti donated an undisclosed amount
Jun 26, 2019 1:51 PM
Maria-Luisa Ficca donated $125.00
Jun 23, 2019 4:37 PM
Ida Como donated $50.00
Jun 23, 2019 3:37 PM
Kristina Magri donated $50.00
Jun 23, 2019 2:39 PM
Peter Iacovone donated $50.00
Jun 23, 2019 11:30 AM
Jordana Cerantola donated $40.00
Jun 21, 2019 11:39 AM
Chris Magnone donated an undisclosed amount
Jun 20, 2019 10:54 PM
Melissa Boyamian donated $125.00
Jun 20, 2019 9:28 PM
Nina Losciuto donated $25.00
Jun 20, 2019 3:20 PM
Fallon Caruso donated $100.00
Jun 20, 2019 2:11 PM
Elisa Bracci donated $50.00
Jun 20, 2019 10:05 AM
Sass Whalen donated $50.00
Jun 19, 2019 9:39 PM
Connie Muro donated $50.00
Jun 19, 2019 9:26 PM
Samir Mourad left a message
Jun 19, 2019 6:29 PM
Bon rétablissement à baby Matthew
Samir Mourad donated $50.00
Jun 19, 2019 6:27 PM
Peggy Gikas donated $100.00
Jun 19, 2019 5:20 PM
Leandro Marandola donated $50.00
Jun 19, 2019 2:05 PM
Benny & stacey Sarno donated $50.00
Jun 18, 2019 9:26 PM
Melissa and Matthew Mazzanti donated $100.00
Jun 18, 2019 9:15 PM
Gueorgui, Tamara & Levon Tachtchian donated $200.00
Jun 18, 2019 8:55 PM
Anthony & Marina Sarno donated $200.00
Jun 18, 2019 8:37 PM
Gianvito Cristiano Jessica Di Meo And family donated $175.00
Jun 18, 2019 7:18 PM
Luisa Rondina donated $250.00
Jun 18, 2019 3:07 PM
Linda Rondina donated $100.00
Jun 18, 2019 2:51 PM
Umberto Caruso donated $100.00
Jun 18, 2019 12:16 PM
Maria Tibaldo donated $100.00
Jun 18, 2019 11:06 AM
Gabriella & Steven Cacciotti donated $100.00
Jun 17, 2019 9:23 PM
Max & Leo Carreira Rafael donated $100.00
Jun 17, 2019 8:54 PM
Vincenzo Di Biasio donated $50.00
Jun 17, 2019 8:26 PM
Adolfo Di Biasio donated $100.00
Jun 17, 2019 8:08 PM
Eric Iacampo & Amanda Panzera donated $75.00
Jun 17, 2019 6:58 PM
Stephanie Alberga donated an undisclosed amount
Jun 17, 2019 6:28 PM
Anonymous donated an undisclosed amount
Jun 17, 2019 2:21 PM
Chanel Najjar donated an undisclosed amount
Jun 17, 2019 10:54 AM
Rosa De Nardo donated $150.00
Jun 16, 2019 10:43 PM
Rosa De Nardo left a message
Jun 16, 2019 10:39 PM
Love you Alessio xx
Karine Tachtchian donated $100.00
Jun 16, 2019 10:28 PM
Victor Kliamenakis donated $100.00
Jun 16, 2019 10:13 PM
Fojan Ansari Guerrera donated $50.00
Jun 16, 2019 9:33 PM
Mary Renda donated $100.00
Jun 16, 2019 8:55 PM
Sabrina Colonnello donated $25.00
Jun 16, 2019 8:40 PM
Stephanie Lapierre donated $25.00
Jun 16, 2019 8:27 PM
Tania Bhamdouni donated $50.00
Jun 16, 2019 8:00 PM
Alberto De Luca donated $100.00
Jun 16, 2019 7:58 PM
Anonymous donated an undisclosed amount
Jun 16, 2019 7:14 PM
Anonymous donated an undisclosed amount
Jun 16, 2019 5:44 PM
Laetitia Kachmar donated $50.00
Jun 16, 2019 1:40 PM
Marche Palumbo donated $250.00
Jun 16, 2019 10:40 AM
Nanette Minichiello Willberg donated an undisclosed amount
Jun 16, 2019 10:16 AM
Riccardo Raso donated $50.00
Jun 16, 2019 9:55 AM
Anthony Mancini donated $100.00
Jun 16, 2019 9:55 AM
Vito left a message
Jun 16, 2019 9:43 AM
Both Anna and I wish your family happiness! Always rooting for the little Angel!
Vito Spadafino donated $75.00
Jun 16, 2019 9:40 AM
Jennifer & Franco Fazzolari donated $100.00
Jun 16, 2019 9:33 AM
Alessandra Ceaari donated $50.00
Jun 16, 2019 9:03 AM
Michael Maggiore donated $50.00
Jun 16, 2019 7:51 AM
Karine Topikian donated an undisclosed amount
Jun 15, 2019 8:53 PM
Claudio Cacciotti donated $50.00
Jun 15, 2019 8:42 PM
Christina Voggas donated $100.00
Jun 15, 2019 7:33 PM
Jennifer Sacco donated $100.00
Jun 15, 2019 6:43 PM
Frank left a message
Jun 15, 2019 6:36 PM
Wishing you and your family the best.
Frank & Beatrice De Cicco donated $50.00
Jun 15, 2019 6:34 PM
Silvanna Veltri donated $75.00
Jun 15, 2019 4:20 PM
Cathy Vittore donated $25.00
Jun 15, 2019 2:43 PM
Andrew Caruso donated $75.00
Jun 15, 2019 2:09 PM
Lucy Di Carlo donated $25.00
Jun 15, 2019 1:38 PM
Susan Teolis donated an undisclosed amount
Jun 15, 2019 1:29 PM
Mike Antonucci donated $100.00
Jun 15, 2019 1:29 PM
Celine Tardif donated $50.00
Jun 15, 2019 11:27 AM
Carole left a message
Jun 15, 2019 11:12 AM
J'espère que tout va bien ce déroulé dans ta campagne de donation, et que tu atteigne ton objectif final. Bisousss Zia Carole
Carole & Natale Schiavetti donated $125.00
Jun 15, 2019 11:05 AM
susan cerantola left a message
Jun 15, 2019 10:56 AM
Alessio has definitely hit the jackpot with wonderful parents like you and Amanda and such supportive families. We are beyond happy that Alessio is doing so well and think about him always. Wishing you all continued great health and happiness.
susan cerantola donated $50.00
Jun 15, 2019 10:52 AM
Antonella Schiavetti & Anthony Salvo donated $200.00
Jun 15, 2019 10:37 AM
Eddy Caruso donated $100.00
Jun 15, 2019 9:54 AM
Chanelle Iacampo donated $50.00
Jun 15, 2019 9:43 AM
Lina Schiavetti donated $100.00
Jun 15, 2019 9:23 AM
Roberto Manzo donated $60.00
Jun 15, 2019 9:19 AM
Michael & Natania De Luca donated $150.00
Jun 15, 2019 9:03 AM
Lisa Lomoro donated $25.00
Jun 15, 2019 8:25 AM
Daniela Schiavetti donated $100.00
Jun 15, 2019 8:25 AM
Mélissa H.Rho donated $50.00
Jun 15, 2019 6:06 AM
Maria Vertullo donated $25.00
Jun 15, 2019 12:32 AM